More Possibilities Start Here

Join the SEPHIENCE community for upcoming events created for people living with phenylketonuria (PKU) and their caregivers. SEPHIENCE events are a chance for everyone to connect, learn, and feel supported.

What to Expect at SEPHIENCE Events

Learn more about SEPHIENCE and PKU

Hear from knowledgeable
speakers ranging from healthcare providers to individuals living with PKU and caregivers

Connect with information that
may support future conversations with your care team

Explore helpful resources

SEPHIENCE Events

Less Limits. More Possibilities.

A SEPHIENCE Event.

Date & time: July 16, 2026, 4:00 PM CT
Location: 2026 NPKUA Community Conference—Lombard, IL
Speaker: Christine Horne, MSN, APRN, CPNP-PC

Less Limits. More Possibilities, starts with learning what’s available for you. Join us for an educational SEPHIENCE event for people living with PKU and their caregivers.

At the event, you’ll have the opportunity to:

  • Learn more about SEPHIENCE and how it may fit into your
PKU journey
  • Meet and learn from Christine Horne, MSN, APRN, CPNP-PC
  • Hear from actual individuals who have experience with SEPHIENCE
  • Participate in Q&A sessions
  • Explore PTC resources and support designed to help keep you informed and supported

Navigating PKU™ Program Series

Navigating PKU™ is a series of educational programs designed to support individuals and families living with PKU. Offered in person, virtually, and in hybrid formats, these sessions provide opportunities to learn, connect, and know that you’re not alone on your journey.

Topics may include:

  • Cooking demonstrations
  • Mental health in PKU
  • Healthcare transition

More events coming soon
Check back for future opportunities to learn, ask questions, and explore what may be possible with SEPHIENCE.

Looking for an event in your area?
Email us at: PatientEngagement@PTCBIO.com

Stay Informed

Sign up to receive updates, insights, and resources straight to your inbox.

Event Registration

Event Title Placeholder

Subtitle Placeholder

Date & time:

Date placeholder

Location:

Location placeholder

Speaker:

Speaker placeholder

All fields are required.

REGISTRANT INFORMATION

ADDITIONAL ATTENDEES

ADDITIONAL ATTENDEE ONE

ADDITIONAL ATTENDEE TWO

ADDITIONAL ATTENDEE THREE

ADDITIONAL ATTENDEE FOUR

ADDITIONAL ATTENDEE FIVE

ADDITIONAL ATTENDEE SIX

ADDITIONAL ATTENDEE SEVEN

ADDITIONAL ATTENDEE EIGHT

ADDITIONAL ATTENDEE NINE

ADDITIONAL ATTENDEE TEN

Reference Number

Name

Contact Information

You are now leaving the SEPHIENCE website and will enter a website operated by an independent third party. The links to third-party websites contained on this website are provided solely for your convenience. PTC Therapeutics does not control the opinions, claims, or comments on any third-‍party website linked to this website; the policies and practices of those third parties will govern your activities at those websites.